What does community mean for someone navigating myotonic dystrophy (DM)?
For many, it means finally finding people who understand—people who share the journey and offer support without judgment.
In this video, individuals and caregivers describe years of feeling isolated before connecting with others through MDF conferences, support groups, and community programs. You’ll hear how finding people who “get it” brings comfort, hope, and a sense of belonging that can’t be found anywhere else.
MDF continues to advance our mission of Community, Care, and a Cure by creating spaces where people living with DM can connect, learn, and support one another.
As the year comes to a close, consider making a gift to help ensure more families experience the connection and community they deserve in 2026 and beyond.
Donate today: https://www.myotonic.org/donate
See the impact of your support: https://www.myotonic.org/impact
