What does care really mean for a family navigating myotonic dystrophy (DM)?
For many in our community, it means having clear information, trusted guidance, and a place to turn—so no one has to face this journey alone.
In this video, families share their experiences with DM, from the uncertainty of diagnosis to the relief of finally finding answers. You’ll hear how the practical tools, peer-reviewed resources, and community connections developed by the Myotonic Dystrophy Foundation (MDF) are improving the lives of families living with DM.
As the year comes to a close, consider making a gift to help ensure more families receive the care, clarity, and support they need in 2026 and beyond.
Donate today: https://www.myotonic.org/donate
See the impact of your support: https://www.myotonic.org/impact
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Care that Connects: How MDF supports families living with myotonic dystrophy
Published: December 5, 2025