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Disease management

Ask-the-Expert: Life hacks from the myotonic dystrophy community

Published: November 14, 2025

Special Ask-the-Expert panel featuring members of the myotonic dystrophy (DM) community as they share their favorite “life hacks” for m...
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Newly diagnosed

Understanding DM1: From Genetics to Care - 2025 MDF Conference

Published: August 28, 2025

This session provides an essential understanding of Myotonic Dystrophy Type 1 (DM1), making it ideal for newly diagnosed individuals an...
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Newly diagnosed

Stories of Inspiration from the DM Community - 2025 Myotonic Dystrophy Foundatio...

Published: June 27, 2025

A celebration of the myotonic dystrophy (DM) community and presentation of MDF Awards, including the Kayla Vittek Memorial Award for Ou...
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Newly diagnosed

Ask-the-Expert: The emotional journey of myotonic dystrophy

Published: June 27, 2025

Do you have questions for myotonic dystrophy (DM) doctors and therapists? Watch our Ask-the-Expert: The Emotional Journey of DM.
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Genetics & disease overview

Understanding Myotonic Dystrophy – The Basics

Published: November 20, 2024

The Myotonic Dystrophy Foundation is excited to introduce Understanding Myotonic Dystrophy, a new series of short educational animation...
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Newly diagnosed

Occupational Therapy and Myotonic Dystrophy - 2024 MDF Regional Conference in Io...

Published: September 14, 2024

This session provides an overview of occupational therapy and how you can utilize this form of healthcare and the services it provides.
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