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— Community voices & inspiration

Community voices & inspiration videos

Hear personal stories and insights from individuals and families living with DM.

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Community voices & inspiration

Advancing the Cure: How MDF drives research in myotonic dystrophy

Published: December 5, 2025

Myotonic dystrophy (DM) research, progress, and hope — see how MDF is helping drive the path toward treatments and a cure.
Community voices & inspiration

Care that Connects: How MDF supports families living with myotonic dystrophy

Published: December 5, 2025

Myotonic dystrophy (DM) care, support, and family stories — learn how MDF helps people find answers and reliable guidance.
Community voices & inspiration

Finding Community: How MDF connects families living with myotonic dystrophy

Published: December 5, 2025

Myotonic dystrophy (DM) community, connection, and support — see how MDF helps families find belonging and understanding.
Community voices & inspiration

MDF State Advocacy Training

Published: February 20, 2025

Join MDF Advocates across the U.S. who are making their voices heard in Congress! Email your Senators and Representatives.
Community voices & inspiration

Give a Gift that Makes a Lasting Impact on the Myotonic Dystrophy Community!

Published: December 28, 2024

Learn how MDF Supports the DM2 Community! Hear directly from Kim Reynolds, a dedicated mother and grandparent.
Community voices & inspiration

Hope & Connection in the Myotonic Dystrophy Community—Luke Desforges' Family...

Published: December 23, 2024

We’re honored to share another powerful story from someone whose life has been profoundly impacted by myotonic dystrophy—Luke Desforges...

All digital academy categories

Genetics & disease overview

Newly diagnosed

Disease management

Clinical trials & drug approval

Congenital & childhood onset

DM Type 1 (DM1)