We’ve refreshed our website! Take a look around, tell us what you think, or revisit the archived site.
Join us at the 2026 MDF regional conference - Happening in a city near you!
Event details
Join the monthly newsletter called MyDispatch - Keeping you up to date in research advances
Join now
Donate
Digital academy
— Congenital & childhood onset

Congenital & childhood onset videos

Understand the unique challenges, care needs, and resources for children with early-onset DM.

See upcoming webinars

View calendar

Browse all

Sort by:

Filter by:

Topic
Filter by Digital Academy Tag
Congenital & childhood onset

Ask-the-Expert: Pediatric endocrinology & myotonic dystrophy

Published: October 10, 2025

This webinar will feature Nadia Merchant, MD, a Pediatric Endocrinologist and Geneticist at Children’s Health in Dallas, Texas.
View full details

Empowering Adult Children: Managing Care, Service Delivery, and Living with CDM ...

Published: August 28, 2025

This session focuses on supporting an adult child with Congenital Myotonic Dystrophy (CDM), offering strategies for promoting independe...
View full details
Congenital & childhood onset

Adulthood Ahead: Essential Planning for Parents of Children with CDM - 2025 MDF ...

Published: August 28, 2025

This session provides essential guidance for parents of children with Congenital DM as they prepare for their child’s transition to adu...
View full details
Congenital & childhood onset

Ask-the-Expert: Key neuropsychological features of DM1

Published: April 22, 2022

Do you have questions about brain-fog and the cognitive issues associated with DM1?
View full details

AMO Pharma - Meet the DM Drug Developers

Published: March 5, 2021

Each month biotechnology, pharmaceutical and academic partners, large and small, working on treatments
View full details

Understanding SSA compassionate allowance for CDM

Published: April 20, 2018

In 2017, MDF finally achieved one of its goals for the community when congenital myotonic dystrophy
View full details

All digital academy categories

Genetics & disease overview

Newly diagnosed

Disease management

Clinical trials & drug approval

Community voices & inspiration

DM Type 1 (DM1)

View all categories

Discover more from the foundation

How we can help

See how MDF can help you on your journey through DM. We're here to help.

DM research

Find information on clinical trials and studies from the foundation.

Community news

Stay updated with community news articles from the foundation.