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Digital academy

Discover expert-led videos and educational content designed to help individuals and families better understand, manage, and navigate life with myotonic dystrophy.

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Genetics & disease overview

Newly diagnosed

Disease management

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Congenital & childhood onset

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Community voices & inspiration

Advancing the Cure: How MDF drives research in myotonic dystrophy

Published: December 5, 2025

Myotonic dystrophy (DM) research, progress, and hope — see how MDF is helping drive the path toward treatments and a cure.
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Community voices & inspiration

Care that Connects: How MDF supports families living with myotonic dystrophy

Published: December 5, 2025

Myotonic dystrophy (DM) care, support, and family stories — learn how MDF helps people find answers and reliable guidance.
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Community voices & inspiration

Finding Community: How MDF connects families living with myotonic dystrophy

Published: December 5, 2025

Myotonic dystrophy (DM) community, connection, and support — see how MDF helps families find belonging and understanding.
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Disease management

Ask-the-Expert: Life hacks from the myotonic dystrophy community

Published: November 14, 2025

Special Ask-the-Expert panel featuring members of the myotonic dystrophy (DM) community as they share their favorite “life hacks” for m...
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PepGen - Meet the DM Drug Developers 2025

Published: November 7, 2025

PepGen presents an update on their DM program.
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Congenital & childhood onset

Ask-the-Expert: Pediatric endocrinology & myotonic dystrophy

Published: October 10, 2025

This webinar will feature Nadia Merchant, MD, a Pediatric Endocrinologist and Geneticist at Children’s Health in Dallas, Texas.
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How we can help

See how MDF can help you on your journey through DM. We're here to help.

DM research

Find information on clinical trials and studies from the foundation.

Community news

Stay updated with community news articles from the foundation.