Living with DM resources

Essential guidance for people with DM and families to safely navigate anesthesia and its risks.

Explains the genetics, diagnosis, symptoms, care management, and more covering all forms and manifestations of DM.

Guidance to financial resources for people with DM, including employment, disability, housing, respite, and adaptive equipment.

Information to help people with DM understand insurance coverage, benefits, and how to navigate claims and appeals.

Plan ahead for clinic visits—track questions and important info to make the most of each appointment.

DM patients face risks from sedatives and anesthesia—follow safety guidelines with the MDF Medical Alert Card.

Guide for people with myotonic dystrophy and families on blood, tissue, and organ donation, eligibility, and informed decision-making.

This guide is specifically designed to help families affected by juvenile-onset DM.

This guide helps parents support those living with DM in school and better understand the IDEA.

This guide provides education on myotonic dystrophy for school professionals.