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— Former Board Members

Former Board Members

Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.

MDF Annual Conference

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John Fitzpatrick

Former Board Member

Joel Revill

Former Board Member

Marsha Dugan

Former Board Member

Alice Gunderson

Former Board Member

Lisa Harvey

Founding Executive Director

The Honorable Tim Kaine

Former Board Member

Dr. Woodie Kessel, M.D., M.P.H.

Former Chairman

Dr. Mel Kohn, M.D., M.P.H.

Former Board Member

Shannon Lord

Founding Chairman

Don Mackenzie

Former Board Member

Ona McConnell

Former Board Member

Todd Stone

Former Board Member

Barry Wald

Former Vice-Chairman

Richard Weston

Former Board Member

Meet the rest of the team

Board of Directors

Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.

Medical & Scientific Advisory Committee

A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.

Staff & Interns

Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.

Support Group Facilitators

Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.

Join us in making a difference

Advocate

Help drive policy change and accelerate progress for people living with DM.

Fundraise

Rally your community to support vital resources and life-changing research.

Volunteer

Join our team of volunteers who bring connection, and support to the community.