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Team —
Support Group Facilitators

Meet Patricia Gibson

Kansas City Regional Support Group

MDF Annual Conference

View past & upcoming conferences

Patricia Gibson is the Support Group Co-Facilitator for the Kansas City region along with John Cooley. Her family joined the Kansas City Support group when it was first formed in 2018. Patricia’s husband and son have DM1 and has found the group meetings helpful. She is a retired teacher and likes reading, doing crossword puzzles, walking with her dog, and bowling. She has been a support group facilitator for the Kansas City Support Group since 2019 and always looks forward to the bimonthly support groups! It’s been encouraging to hear other people’s thoughts and stories about living with Myotonic Dystrophy and caring for their loved ones.

Meet the rest of the team

Board of Directors
Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.
Medical & Scientific Advisory Committee
A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.
Staff & Interns
Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.
Support Group Facilitators
Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.
Former Board Members
Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.