Kevin Brennan of FaegreBD Consulting in Washington, DC, presents this overview of the 114th Congress. Learn about the key players and what the current structure of Congress means for rare diseases and related legislation.
The 21st Century Cures Initiative is a bipartisan effort within the House of Representatives' Energy & Commerce Committee, aimed at improving the treatment research, development, and delivery process within the US. In 2014, MDF joined the 21st Century Cures Coalition and worked closely with the Committee and the initiative's leaders, Chairman Fred Upton (R-MI) and Rep. Diana DeGette (D-CO), to ensure that the DM community was considered in all aspects of this legislation. MDF also submitted comments in response to the Committee's white paper on the initiative and modernizing the drug development pipeline.
This webinar, presented by Dave Zook of FaegreBD Consulting in Washington, DC, provides an overview of this important initiative, and what it means for the DM community.
Dr. Richard Moxley of the University of Rochester addresses different endocrine problems that challenge patients with mytonic dystrophy types 1 & 2, how they can lead to symptoms and be associated with alterations in blood test measurements, known treatments to mitigate potential symptoms and future opportunities to develop better understanding of these endocrine problems.
In this webinar, Kari Lane, RD, CNSC, Clinical Dietitian at the University of Utah, discusses nutritious diets to maintain heart and GI health for people living with myotonic dystrophy.
The Myotonic Dystrophy Foundation presents a training video for clinical trials participants, presented by Dr. Bruce Wentworth of Genzyme, and Jeanne Dekdebrun and Elizabeth Luebbe of the University of Rochester.