We are Stronger Together. Thank You for Your Support!

Thanks to you—the Myotonic Dystrophy Foundation (MDF) community members who volunteer, donate, advocate and help fulfill our mission of Community, Care, and a Cure—MDF has become the world’s largest myotonic dystrophy (DM)-only patient advocacy organization, serving individuals and families around the world.

The State of the Foundation is Strong!

The Myotonic Dystrophy Foundation was founded by families with DM seeking to help one another and to find a cure. Every day, we focus on helping families living with myotonic dystrophy by delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies. You make this work possible, and we want you to know just how much impact you have helped to create.

Change the Future of Myotonic Dystrophy!

Hear directly from the DM community about how your support is transforming lives. Through our recent video series, community members and research partners share powerful stories of progress, resilience, and hope—all made possible by the generosity of donors like you. Click here to make a contribution! >>>

Explore Our Annual Reports