Myotonic is pleased to announce our 3rd Myotonic Annual Conference. Building on the success of the 2011 Conference, which over 400 people attended, this year's event gives families and the medical community the opportunity to once again gather together to learn the latest updates on research and get information about diagnosis, treatment and daily living issues.
Our conference program is very interactive. In addition to presentations and Q&A sessions with leading medical providers in the field of myotonic dystrophy, the weekend's events are designed so that community members can meet each other, share stories, and build a network of friends. This year we are introducing the Resource Fair, which will include the chance to join DM patient registries, get information on tissue donation, and visit with conference presenters and service and product vendors. Myotonic's new Digital Academy video library will be available for viewing throughout the weekend, providing an opportunity to learn the basics about this complex disorder from leading clinicians. Myotonic staff and Board members will be on hand to share news about exciting new and expanded Myotonic programs and initiatives and how you can become involved. And with no scheduled programming on Sunday, you and your family will have the chance to join community-driven meetings with others (complimentary meeting spaces will be provided) or explore the beautiful San Francisco Bay Area.
See the program, registration and lodging information for more details.
Date
Friday-Saturday, August 17-18, 2012
Where:
Hyatt Regency San Francisco Airport
133 Bayshore Hwy
Burlingame, CA 94010
Phone: (888) 421-1442
www.sanfranciscoairport.hyatt.com
What to expect
- Presentations and Q&A sessions with leading DM professionals
- Meet and connect with other families
- Resource Fair: Chance to sign up for DM registries, research studies, and more
- Childcare will be provided during the sessions
Past Conference Experiences
"We had an amazing time and were so happy to meet many of the families we have been chatting online with this past year. Every time I turned around, I recognized a face I had seen online and it made me feel right at home."
"In my mind, validation transcends all of the bits and pieces of advice and evidence that were offered."
"Thanks for not only making the conference a class act, but also for creating a forum where we all had the opportunity to communicate and get to know each other. We also learned so much not only from the lectures but from each other. Thank you for making this all possible, for your dreams and for the hopes we all have for the future."
"Recently home and found the social side of things well worth the trip - the rest was gravy! Fantastic to have the resources and everyone was so approachable."
"I have attended many conferences in my life. This one was well run, most importantly of all, bridged a gap between researchers, clinicians, and patients and patient advocates. It would not be an overstatement to say that the conference and access to these brilliant and dedicated professionals, has changed my family's lives."
Questions
If you have questions regarding the conference, registration or if you are interested in sponsorship and/or vendor opportunities, please contact us at conference@myotonic.org or call 858-480-6706. Please allow 24 hours for a reply.