2014 MDF Annual Conference: Working with Hippotherapy

Nonprofit Organizations

American Hippotherapy Association
Use this website to find a hippotherapist and/or therapeutic riding center in your geographic area.
Muscular Dystrophy Association Quest Magazine
“Not Just Horsing Around”
Xenophon Therapeutic Riding Center
(Their promotional video explains how horse therapy helps children.)

Myotonic Dystrophy News

February 21,2025

Understanding Myotonic Dystrophy: Inheritance of Myotonic Dystrophy Type 1 (DM1)

MDF is excited to introduce “Understanding Myotonic Dystrophy”, a new series of short educational animations designed to educate people living with myotonic dystrophy (DM) and their healthcare providers! Our second animation “Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 1 (DM1)”, explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing.

February 21,2025

Research Fellowship Feature: Haneui Bae, PhD

Drawn to RNA biology, Dr. Bae joined Dr. Auinash Kalsotra’s lab at the University of Illinois for postdoctoral training. Currently, Dr. Bae is working on the project “Investigating the molecular mechanisms of liver dysfunctions in myotonic dystrophy” and optimizing protein quantification assays and exploring DM1 pathologies in the liver, a largely overlooked organ in DM1 research.

February 21,2025

Research Fellowship Feature: Emily Davey, BS

Meet 2025 Fellowship Recipient, Emily Davey, BS! Emily Davey was introduced to DM at nine when a family friend's daughter was diagnosed with congenital myotonic dystrophy. She previously volunteered in Dr. Andy Berglund’s lab at SUNY Albany. She now works in Dr. Eric Wang’s lab at the University of Florida, focusing on the CNS impacts of DM and is working on the project, “Uncovering regional and cell-type specific transcriptomic signatures in the DM1 brain”. Inspired by interactions with DM patients and families, Emily Davey aims to pursue a postdoctoral fellowship in DM research and become a senior researcher specializing in CNS mechanisms in DM1.

January 22,2025

Happy New Year from MDF's Chief Executive Officer!

As we welcome 2025, MDF is filled with hope and excitement for the year ahead! From launching new support programs and resources to hosting the International MDF Conference this May, we're making strides to advance care, connection, and hope for the DM community. Read a special message from our CEO, Dr. Tanya Stevenson!

January 22,2025

Join the Fight for DM Research Funding: Become an MDF State Advocacy Captain

Join MDF for a Advocacy webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy and become a US State Advocacy Captain.

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.