2016 Annual Inherited Neuromuscular Disorders Family Conference

UPIN and MDA will host the 2016 Inherited Neuromuscular Disorders Family Conference

November 5th, 2016
10 AM – 5 PM
University Park Marriott Hotel, Salt Lake City

Conference presentations and discussions will focus on Congenital Muscular Dystrophies (CMD), Duchenne Muscular Dystrophy (DMD), Facioscapulohumeral Muscular Dystrophy (FSHD), Charcot Marie Tooth (CMT), Myotonic Dystrophy (DM1 & 2), Spinal Muscular Atrophy (SMA), and Pompe Disease
in the following specialty areas:

Cardiology - Dietetics - Genetics - Physical therapy - Neuropsychology - Orthopedics - Respiratory therapy - Speech

Special guest speaker C. Tyler Briggs
will discuss managing resources to continue education and career development while living with a neuromuscular condition.

Meet with representatives from FSHD Society, CMTA and MDF,
and several pharmaceutical companies who are sponsoring clinical trials in inherited neuromuscular disorders.

All family and friends are welcome to attend.

Childcare will not be available.

To reserve a room at the University Park Marriott Hotel at the discounted conference rate, please contact Trisha Koukoulias at or 801-584-3317.

Questions? Email UPIN. Click here to learn more about UPIN.

Date(s)

Sat, 11/05/2016 - 05:00AM

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Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.