The 2017 MDF Annual Conference was held in San Francisco, CA September 8-9, 2017. Videos and presentations from the conference are available via the links below in order of their presentation at the Conference. Caregiver and support group meetings were not taped and do not have presentations.
If a link is not available, the presentation and/or video has not been received or is not yet available. Please check back or contact Myotonic for more information.
Resources & Recordings
All About the Heart: Updated Research and Symptom Management
Presentation
Matthew Wheeler, MD, PhD, Stanford University
Orthotics and Mobile Devices
Presentation
Tina Duong, MPT, PhDc, Stanford University
DM and Nutrition: Debunking Myths and Developing Eating Strategies
Presentation
Rebecca Hurst-Davis, MS, RD, Intermountain Homecare and Hospice
Help for DM Parents: Educational Tools and Resources for Ages 1 to 21
Presentation
Laura Kaloi, McKeon Group
DM 101: Getting a Handle on the Basics
Presentation
Johanna Hamel, MD, University of Rochester
Becoming a DM Advocate: Community Training
Presentation
Kevin Brennan, Faegre Bakers Daniel Consulting
IDMC-11 and MDF Annual Conference Awards Ceremony
Video
Kelly Tribute Video
Bringing the Patient Voice to CNS Targeting Drug Development in DM
Video 1, Video 2, Session Presentation, CNS Overview Presentation
James Valentine, JD, Hyman, Phelps & McNamara; John Day, MD, PhD, Community panelists
DM Sleep Disorders: Updated Research and Management Strategies
Video, Presentation
John Day, MD, PhD, Stanford University
DM, Cancer and Aging: What Patients Should Know
Presentation
Shahinaz Gadalla, MD, PhD; Mark Greene, MD; National Institutes of Health
DM and Mental Health: Managing Anxiety, Depression and Other Symptoms
Video, Presentation
Melissa Dixon, PhD, University of Utah
MDF Research Update: What's Been Accomplished, What's Next
Video, Presentation
John Porter, PhD, Myotonic Dystrophy Foundation
DM and Dental Care: The Neglected Risk
Video, Presentation
Darcy Trill, RDHAP, Goldenscalers Mobile Dentristy
DM2 Symptom Management
Dr. Schoser's presentation included unpublished information and is therefore not available
Benedikt Schoser, MD, PhD, Ludwig Maximilians University
Beyond General Anesthesia: Opiates and Other Pain Meds
Video, Presentation - Sampson
Jacinda Sampson, MD, PhD, Stanford University
Presentation - Bowler
Ian Bowler, MD, MDSG
Expanding the Pipeline: Industry Updates on Drug Development
Video, Presentation - Mignon
Laurence Mignon, PhD, Ionis Pharmaceuticals;
Joseph Horrigan, MD, AMO Pharma;
Matthew Disney, PhD, Expansion Therapeutics
Conference Question and Answer Session
Various professionals
Live Performance
Recording Artist and Musician Eric Hutchinson
Questions?
Contact Myotonic via email or phone: 415-800-7777.