The 2018 MDF Annual Conference took place Friday, September 14, 2018, through Saturday, September 15, 2018, in Nashville, TN. This year’s conference featured networking, symptom management and research update sessions for community members and a full-day closed research and drug development track for academic and industry professionals. More than 400 families, clinicians, researchers, industry representatives and caregivers attended to improve the lives of people living with myotonic dystrophy.
Videos and presentations from the conference are available via the links below in order of their presentation at the Conference. Caregiver and support group meetings were nto taped and do not have presentations. If a link is not available, the presentation and/or video has not been received or is not yet available. Please check back or contact Myotonic for more information.
Resources & Recordings
Gut Instincts: GI Symptom Management
Presentation
Leila Neshatian, MD, MSc, Stanford University
Breathe Easy: Respiratory Symptom Management
Presentation
Valeria Sansone, MD, NEuroMuscular Omnicentre (NEMO)
DM 101: Getting a Handle on the Basics
Presentation
Nicholas Johnson, MD, Viriginia Commonwealth University
Staying Strong: DM & Exercise
Presentation
Katy Eichinger, PT, PhD, Stanford University
Becoming a DM Advocate: Community Update & Training
Presentation, Embedded Video of Senator Durbin
Jenn Dale, Faegre Baker Daniels
Living with DM: Patients Report on Changes Over Time
Video Recording, Presentation
Facilitator: Charles Thornton, MD, University of Rochester
Strategies for Managing Progression
Video Recording, Presentation
Cynthia Gagnon, PhD, OT, Université de Sherbrooke
Video Recording, Presentation
Missy Dixon, PhD, University of Utah
Consensus-based Care Recommendations: What Do They Mean for You?
Video Recording, Presentation
Facilitator: Jacinda Sampson, MD, PhD, Stanford University
Accelerating the Search for Therapies: What's Happening, What's Next
Video Recording, Presentation
Elizabeth Ackermann, PhD, MDF
Industry Updates on Drug Development
Video Recording, Presentation
Ranjan Batra, PhD, Locana
Video Recording, Presentation
Matthew Disney, PhD, Expansion Therapeutics
Video Recording, Presentation
Joseph Horrigan, MD, AMO Pharma Ltd.
Video Recording, Presentation
Laurence Mignon, PhD, Ionis Pharmaceuticals
Conference Q&A
Video Recording
Cynthia Gagnon, PhD, OT, Université de Sherbrooke
Laurie Gutmann, MD, University of Iowa
Charles Thornton, MD, University of Rochester
Laurence Mignon, PhD, Ionis Pharmaceuticals
Questions?
Contact Myotonic via email or phone: 415-800-7777.