Thank you for your interest in becoming a volunteer Support Group Facilitator (SGF) with the Myotonic Dystrophy Foundation (MDF)!
SGFs play a vital leadership role in offering support to the Myotonic Dystrophy (DM) community and connecting community members to MDF and its many resources. We are grateful for the dedication and commitment of our SGFs and look forward to reviewing your application.
What are SGF's?
SGFs are volunteer community leaders who receive training and support from MDF. Their role is to provide a place for those living with DM and their caregivers to confidentially share their experiences, learn from others also impacted by DM, and access resources and information to help improve quality of life. It is important to note that SGFs are not trained medical professionals and cannot give medical advice.
Support groups are offered in-person and/or virtually depending on the type of support group and the location. All of our upcoming virtual meetings are listed online.
SGF Qualifications & Responsibilities
- SGFS must be a person with a genetic diagnosis or a caregiver of someone living with a genetic diagnosis of DM1 or DM2.
- SGFs must commit to hosting at least 4 virtual and/or in-person support groups each year.
- SGFs must adhere to MDF guidelines and code of conduct.
Click here for a full list of requirements for MDF SGFs.
Thank You to Our SGF Training Sponsor
Special thanks to our 2024 SGF Training Sponsor, Avidity Biosciences, for helping expand our support programs! By sponsoring our Support Group Facilitator Training Program, Avidity Biosciences, is helping MDF provide the training, resources, and ongoing support needed to ensure our facilitators are well-prepared leaders who will guide and empower the myotonic dystrophy community.
2024 MDF Support Group Facilitator (SGF) Application
Please review and complete the application below.