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Myotonic Dystrophy In Motion Awareness Month

Each July, MDF hosts intentional movement based programming to encourage the DM community to get active, and keep moving! See how you get involved this July!

Move. Connect. Thrive. Celebrate DM In Motion Awareness Month!

Movement can improve both the physical and mental well-being of people living with myotonic dystrophy. Movement can be as variable as the members of the myotonic dystrophy community, and can include a variety of activities like walking, biking, swimming, yoga, dance, sports, and more!

Find resources from the foundation on how you can get active!

How you can participate

Connect with members

Community is one of the keys to motivating ourselves to move. Connect with other members of the DM community through support groups and other support programs.

Host a fundraiser

Raise critically needed funds for DM research and care! The Miles for Myotonic Dystrophy Toolkit includes everything you need to host a 2-mile walk/roll (or a distance of your choice) in support of the foundation.

Get educated on exercise and DM

Learn more about the science behind exercising with myotonic dystrophy and the resources and strategies available for building and maintaining a life in motion.

Download the MDF Exercise Guide

This guide was developed for those living with DM and includes information on the benefits of exercise for DM, recommendations on aerobic activity, types of exercise, monitoring exercise, exercise strategies and finding motivation.

Join upcoming events

View the event calendar on our website to get more details on upcoming webinars, support group meetings, conferences, and more from the foundation.

Sign up for our newsletter

Stay up to date during DM in Motion Awareness month in July! We'll send you upcoming events, resources, and other programs you can participate in.

How it started

What started as an idea for MDF activewear by community member Luke Bolt and his family has evolved into the Myotonic Dystrophy In Motion Movement! A new MDF care initiative to unify, inspire, and encourage the international DM community to start moving!

After the incredible outpouring of support and interest in his MDF Bike Jersey at the 40th Annual Seattle to Portland Bike Ride, community member Luke Bolt sought to keep up the momentum.

DM in Motion related videos

Disease management

Flexibility & chair yoga - 2025 Myotonic Dystrophy In Motion Awareness Month

Published: September 26, 2025

Join Mariah Santellan for a calming, accessible chair yoga class that emphasizes flexibility and breath
Disease management

Aerobics & cardio - 2025 Myotonic Dystrophy In Motion Awareness Month

Published: September 26, 2025

Dr. Kristina Kelly guides a heart-healthy cardio session with options for seated or standing movement

Exercises for Everyday Life - 2024 In Motion Awareness Month

Published: July 19, 2024

Join MDF Grantee, Kristina Kelly, DPT, University of Missouri-Columbia, for a webinar focusing on incorporating small exercises into yo...

DM In Motion specific resources

Change the future of myotonic dystrophy by joining the movement! For authorized use of Myotonic Dystrophy In Motion language and images, please email info@myotonic.org or call us at 415-800-7777.