Meet Richard Weston

Richard Weston joined the MDF Board of Directors in 2010. Previously, he was the president and founder of the International Myotonic Dystrophy Organization (IMDO). Richard founded the IMDO following a diagnosis of myotonic dystrophy in his immediate family. In 1996, he started posting information he had found about myotonic dystrophy on a website and the IMDO grew from there. Upon joining the MDF Board Richard said, “Finding a cure for myotonic dystrophy has always been a shared goal of both organizations. As we have all begun to gain ground on that goal, the board of directors of the IMDO felt that this was the right time to direct our efforts into the MDF, resulting in a strong, efficient effort towards our shared mission.”