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— National Advocacy Committee (NAC)

National Advocacy Committee (NAC)

First launched in 2022, the MDF National Advocacy Committee (NAC) is a group of extraordinary community volunteers dedicated to working at the federal level in the US to increase myotonic dystrophy (DM) awareness, grow DM research funding, and advance policies to accelerate the approval of drugs to treat and eventually cure DM.

South East Regional Support Group

Finger Lakes and Upstate New York Regional Support Group

National Advocacy Committee, Founding Executive Director

National Advocacy Committee

Chicago Regional Support Group