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Team —
Support Group Facilitators

Meet Jim Dolan

Affected Men’s Support Group

MDF Annual Conference

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Jim Dolan is the Support Group Facilitator for the newly formed Affected Men’s Group. Raised and currently living in the Boston area, Jim also spent years in the UK, including graduate school in Edinburgh. He was diagnosed with DM1 in 2022 after almost 20 years of misdiagnosis, when his doctor introduced him to the MDF. A New England Patriots and football fan, he loves hanging out with friends, and going to the theater, movies, breweries, and interested in fitness and wellness, including learning more about DM1 modifications and nutrition. He also enjoys singing and is always one of the first people up at a karaoke night.

Meet the rest of the team

Board of Directors
Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.
Medical & Scientific Advisory Committee
A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.
Staff & Interns
Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.
Support Group Facilitators
Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.
Former Board Members
Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.