Originally presented on September 20th, 2024.
Do you have questions for myotonic dystrophy (DM) doctors? Join certified genetic counselor, Shawna Feeley, MS, CGC, from the Seattle Children's Hospital, for an "Ask the Expert" webinar on DM and Genetic Testing & Counseling!
Find all our upcoming Ask the Expert dates and previously recorded sessions! >>>
MDF Resources referenced in this video:
- Toolkits & Publications
- Support Groups
- Calendar of Events
- DM Drug Development Pipeline
- Myotonic Dystrophy Family Registry
- 2025 MDF Annual Conference
- Sign up for My Dispatch, our monthly e-newsletter!
About our Myotonic Dystrophy Expert
Shawna Feely, MS, CGC, Certified Genetic Counselor at the Seattle Children's Hospital
Shawna Feely is a certified genetic counselor at Seattle Children’s Hospital specializing in Neurogenetics / Neuromuscular disorders. Shawna has worked with families affected by genetic diseases of the nervous system for almost 20 years. Her role includes helping families navigate the process of genetic testing while providing support and education about their diagnosis. She has also combined her clinical role with research and helped with gene discovery programs and natural history studies. Shawna has developed multidisciplinary care centers for people with neurogenetic/neuromuscular disorders at Wayne State University and University of Iowa.
In 2022, Shawna joined the Seattle Children’s Hospital Neurology team to build a Neurotherapeutics Program to provide guidance regarding targeted therapies and medical management to families with genetically determined neurological disorders. Shawna is happy to have joined this great team and looks forward to continuing to partner with patients and families affected by these conditions!