Originally presented on July 25th, 2024.
Do you have questions for myotonic dystrophy (DM) doctors? Join world-class DM cardiologist, Dr. William J. Groh, for an "Ask the Expert" webinar on DM and the heart!
Find all our upcoming Ask the Expert dates and previously recorded sessions! >>>
Myotonic Dystrophy Cardiac / Heart Resources
- Myotonic Dystrophy and the Heart: A Community Guide: For individuals living with myotonic dystrophy, heart or “cardiac” issues can pose a serious threat to their health. Since the heart is itself a muscle, people living with myotonic dystrophy type 1 (DM1) or type 2 (DM2) can experience cardiac issues. This resource aims to help people living with DM understand heart health risks and how they are managed.
- Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1: In order to improve and standardize care for people living with myotonic dystrophy, 10 leading myotonic dystrophy (DM1) cardiologists in Western Europe, the UK, Canada, Japan and the US joined together to create these Consensus-based Care Recommendations!
About our Myotonic Dystrophy Expert
Dr. William J. Groh, MD, MPH
Dr. William J. Groh is a board-certified Internal Medicine Specialist, Cardiologist, and Cardiac Electrophysiologist. He has been involved in providing clinical care of patients with myotonic dystrophy and cardiac issues since 1994. Dr. Groh has conducted clinical research to determine how best to assess the heart in myotonic dystrophy.
Dr. Groh led a multicenter group assessing cardiac outcomes in individuals with myotonic dystrophy type 1. He was the lead author on an international consensus document on cardiac care for patients with neuromuscular disorders published recently. Dr. Groh is currently the Chief of Medicine at the Ralph H. Johnson VAMC in Charleston, SC and holds an academic appointment at the Medical University of South Carolina. Dr. Groh continues to provide care for patients with cardiac and cardiac arrhythmia issues.