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Thank You for Helping Change the Future of Myotonic Dystrophy
The Myotonic Dystrophy Foundation (MDF), a non profit public charity, focuses on Community, Care, and a Cure for people living with myotonic dystrophy (DM). Every contribution you make helps us deliver essential support and information to patients, families and the medical community. We also fund and support important research efforts, raise awareness, and advocate with legislators and federal agencies. We couldn't do it without you!
After making a contribution, you will receive a tax receipt from MDF acknowledging your donation either online or by mail.
Click here to make a contribution to MDF now! >>>
Donate by Mail
You can make your check out to Myotonic Dystrophy Foundation.
Please mail all donation correspondence to:
Myotonic Dystrophy Foundation
663 Thirteenth Street, Suite 100
Oakland, CA 94612
Have Donation Questions or Need Support?
Contact MDF by phone at 415-800-7777 or by email at development@myotonic.org for any donation-related questions or support.
Frequently Asked Questions
Your contribution can honor or in memorialize an individual or family.
If donating online, please follow the instructions when completing the form.
If you are mailing a check, please make sure to include:
- The person you honoring or memorializing.
- Names and contact information of individuals who should notified of the gift.
- Any special or personal message to be included with the notification.
Interested in donating to MDF via a gift of stock or ACH/Wire Transfer? If so, please contact us at 415-800-7777 or via email at development@myotonic.org for more information.
Your company's corporate matching program can double the impact of your gift. Ask your employer today, or reach out to MDF at 415-800-7777 or development@myotonic.org for more information.
We love to partner with our community through grassroots fundraising! These fundraisers can be anything you’d like, and range from social media fundraisers to gala dinners to organized foot races. Hosting a campaign can be fun, and MDF is here to help. We have resources to help you organize, plan, promote, and execute your grassroots vision.
For support on starting your own fundraiser, contact MDF at development@myotonic.org.
Donate Tissues, Blood - Even Your Amazing Brain! Myotonic dystrophy is a rare disease, so researchers have difficulty procuring the samples they need for investigations. By donating to a Biobank, you can help researchers make scientific discoveries that may ultimately benefit individuals and families living with DM.
Learn more about how biobanks are changing the future of myotonic dystrophy. >>>
The Stanford Biobank is a collection of biological samples from donors with neuromuscular conditions such as myotonic dystrophy. The Biobank contains samples such as blood, muscle, skin biopsies, spinal fluid, and other clinical specimens, collected from donors with myotonic dystrophy as well as their unaffected family members. Samples can be collected with your consent during routine clinic visits, during scheduled surgical procedures, or after death with your family’s consent. The Biobank organizers then store these samples so that they can be shared with scientists throughout the world for research. These samples are tremendously valuable for determining how neuromuscular conditions affect the body, which will help develop meaningful treatments.
Click here to learn more about the Stanford Biobank and how you can enroll. >>>