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Join us at the 2026 MDF regional conference - Happening in a city near you!

Finger Lakes & Upstate NY Regional Support Group Meeting

Every Other Month

Join MDF Support Group Facilitators, Emily Jones and Lois Schenk, for an in person meeting of the New York Myotonic Dystrophy Community every other month!

Presenting

Lois Schenk

Finger Lakes and Upstate New York Regional Support Group

Emily Jones

Finger Lakes and Upstate New York Regional Support Group

Join us for an In Person Rochester and Finger Lakes Regional Support Group Meeting!

Every Other Month
10:30 AM – 12:00 PM Eastern Time

Gates Public Library
902 Elmgrove Road Rochester, NY, 14624 

You are invited to an in person meeting for the New York Myotonic Dystrophy Community! Join MDF Support Group Facilitator, Emily Jones and Lois Schenk, for an in person meeting every other month!

Are you looking for others with Myotonic Dystrophy to talk to? Are you a caregiver or family member looking for others to help you better support your family member with DM1 or DM2? Adults with DM1, DM2, and their Caregivers are all welcome.

This group will not be meeting in July 2026. 

Questions?

To RSVP or ask questions, contact MDF by email at info@myotonic.org or by phone at 415-800-7777.

We hope to see you soon!

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