The MDF Toolkit is currently being reviewed and updated!

The new Toolkit is expected to be complete by the end of 2025. Fill out the form below to order a hard copy of the new MDF Toolkit, and it will be shipped to you when they are available for print.

In the meantime, click here to download an electronic copy of the current MDF Toolkit. The Toolkit provides valuable information compiled by MDF and our scientific and medical advisors to educate people living with DM, their medical providers and caregivers. This one-of-a-kind document provides you with specifics on:

• How DM affects your body
• The genetics of DM
• Strategies and information for managing and living with DM
• Additional resources
• A checklist to take to your doctor's office
• Information directed to your physician(s) and medical professional(s) to help them understand your disorder and symptoms, and much more.

All community members who request a hard copy Toolkit will also receive a DM anesthesia bracelet and a copy of the My Clinic Visit Planner. We will also send you monthly email updates that include articles on myotonic dystrophy, the latest medical advances, programs and updates from MDF, and much more.

The MDF Toolkit is also available electronically in English, French, German, Icelandic and Spanish.

If you need printed materials in the meantime, please reach out to info@myotonic.org.