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Join the Fight for DM Research Funding: Become an MDF State Advocacy Captain

Published on Wed, 01/22/2025

Do You Think US Congress Should Support More DM Research Funding?

Join the Myotonic Dystrophy Foundation (MDF) for a webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy (DM) and become a US State Advocacy Captain.

For the past seven years, with the support of MDF advocates like you, the US Congress has made DM eligible for research funding through the Peer-Reviewed Medical Research Program (PRMRP). This has led to over $24 million in new funding, bringing us closer to the first FDA-approved treatments for DM. But we need your help to push for an additional $10 million in dedicated DM research funding.

This February, during Rare Disease Month, join us to learn how you can make a real difference by becoming a US State Advocacy Captain. Congress needs to hear from more people about the challenges of living with DM and the urgent need for more research funding.

Register Now!
 

What Does a US State Advocacy Captain Do?

As a US State Advocacy Captain, you’ll be part of a nationwide network of MDF volunteers who lead advocacy efforts in their states. You’ll:

  • Lead efforts to raise awareness about the challenges of living with DM.
  • Coordinate congressional meetings to advocate for DM research funding.
  • Discuss progress and help strengthen the movement for more funding.

In this webinar, we’ll show you how to get started, teach you key advocacy skills, and explain how MDF can support you to help you succeed. Click here to register now!

Register Now!

Don’t miss your chance to help make a real impact for the DM community this Rare Disease Month. Together, we can secure more research funding and bring us closer to life-changing treatments.

Register Now!