News  Donate!

MDF State Advocacy Captain Training


Tuesday, February 11th
4:00 PM Pacific


Register Now!
 

Do You Think US Congress Should Support More DM Research Funding?

Join the Myotonic Dystrophy Foundation (MDF) for a webinar on February 11th at 4pm Pacific to learn how you can help increase research funding for myotonic dystrophy (DM) and become a US State Advocacy Captain. Click here to register now! >>>

What Does a US State Advocacy Captain Do?

As a US State Advocacy Captain, you’ll be part of a nationwide network of MDF volunteers who lead advocacy efforts in their states. You’ll:

  • Lead efforts to raise awareness about the challenges of living with DM.
  • Coordinate congressional meetings to advocate for DM research funding.
  • Discuss progress and help strengthen the movement for more funding.

MDF Advocates Make a Difference

For the past seven years, with the support of MDF advocates like you, the US Congress has made DM eligible for research funding through the Peer-Reviewed Medical Research Program (PRMRP). This has led to over $24 million in new funding, bringing us closer to the first FDA-approved treatments for DM. But we need your help to push for an additional $10 million in dedicated DM research funding. 

Click here to learn more about MDF's current advocacy priorities! >>>

Date(s)