MDF Support Group Facilitator Meeting Feedback Form

This form is for facilitators of MDF Support Group Meetings. Please fill out this form in its entirety. Submit a form after each Support Group Meeting you facilitate.

If you have not yet scheduled your next group meeting, please fill out this form.

Name

Support Group Name

When was your meeting?

Who attended you meeting? Please provide names and emails for each attendee!

Attendees living with DM1

Attendees living with DM2

Caregiver attendees

Guest Speaker Attendees

Other types of attendees

Did you have any first time attendees? If so, who were they?

Tell us about your meeting, especially any successes or anything you need MDF to respond to.

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Myotonic Dystrophy News

December 17,2024

Research Pilot Grant Feature: Paloma Gonzalez Perez, MD, PhD

2024 Pilot Grant Recipient, Paloma Gonzalez Perez, MD, PhD, is leading an exciting Pilot Grant-funded study titled "Investigating Benefits of a Physical Therapist-Guided Exercise Program in Myotonic Dystrophy Type 2 (DM2)". This innovative project tests the effectiveness of the PRIME program, a patient-friendly regimen designed to strengthen the core and proximal limb muscles often affected in DM2.

December 17,2024

Research Pilot Grant Feature: Joel R. Chamberlain, PhD

As an MDF Pilot Grant recipient, Dr. Joel R. Chamberlain, PhD, is leading an exciting project titled “Efficacy Testing of Cell-Derived Nanovesicle Delivery of Small Interfering RNAs for Treatment of DM1.” Her team is pioneering a novel approach to treat DM1 by utilizing natural cell-derived vesicles to deliver therapies aimed at eliminating toxic RNA structures in the muscles and tissues of DM1 patients.

December 17,2024

Nouveau Groupe de Soutien International Pour les Francophones!

MDF est ravi de lancer un nouveau groupe de soutien international pour les francophones en janvier 2025! Ce groupe sera notre troisième groupe linguistique international et espère impliquer les membres de notre communauté du monde entier.

November 27,2024

MDF Launches 2025 Pilot Grant Applications

We have launched a new round of our Pilot Grants Program! This program offers $50,000 in one-year support for researchers focused on myotonic dystrophy (DM). The goal is to provide DM researchers with the opportunity to explore innovative ideas and conduct preliminary investigations. This funding can help generate essential data and preliminary findings, laying the groundwork for larger-scale research projects.

November 21,2024

Meet the 2024 MDF Pilot Grant Recipients!

We are thrilled to introduce the recipients of our first round of the Pilot Grant program, each leading groundbreaking research to advance understanding and treatment of myotonic dystrophy (DM). These innovative projects represent the future of DM research, and we are excited to support their important work!

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.