Mindy Kim officially joined the MDF team as Registry Outreach Specialist in March 2023. Since her diagnosis of DM1 in 2010 she has become an active community member and advocate. In her spare time she proudly serves as a volunteer to facilitate the MDF Support Group for North & South Carolina, while also leading the Supportive Facebook Chat for Adults, as well as Friday Night DM Happy Hour. In her new role as Outreach Specialist for the Myotonic Dystrophy Family Registry (MDFR), she is working hard to update and expand the registry. You might be fortunate to receive a phone call from Mindy about updating your registry profile. As research and trials in DM are advancing quickly, she wants to ensure your profile is up to date so you don’t miss any opportunities to participate in helping change the future of myotonic dystrophy!