Join us for the Myotonic Dystrophy Advocacy Workshop

Monday, July 20th
12:00 PM - 1:00 PM PDT

Register for the Workshop!

As part of our efforts to begin to build a giant team of Myotonic Advocates from across the country we will be hosting a live Myotonic Dystrophy Advocacy Workshop on July 20 at 12 PM PDT to teach interested advocates the basic information and communications skills you will need to know to succeed.

This Advocacy 101 program will cover the basics like how to find out who your Senators and Representatives are and how to contact them. We will review best practices for communicating with your elected representatives and sample emails and talking points that Myotonic will be developing and sharing with advocates in the form of Legislative Action Alerts. And we have time to answer your questions regarding this work.

To quote Senator Robert F. Kennedy, “Each time a man stands up for an ideal, or acts to improve the lot of others, or strikes out against injustice, he sends forth a tiny ripple of hope, and crossing each other from a million different centers of energy and daring, those ripples build a current that can sweep down the mightiest walls of oppression and resistance.”