These special one-day events bring together MDF, clinicians and researchers to support the myotonic dystrophy (DM) patient and family community. DM Days are wonderful opportunities to hear research updates first-hand, learn current DM disease management strategies and network with other local community members.

For more information or to hold a DM Day in your community, please send an email to info@myotonic.org.

Resources and Presentations from Previous MDF DM Days

August 5th, 2023 - University of Kansas Medical Center

July 20, 2019 - University of Kansas

• Myotonic Dystrophy Pulmonary Treatments
  Damien Stevens, MD
• Myotonic Dystrophy: Manifestations, Genetics and Management
  Constantine Farmakidis, MD

June 29, 2019 - University of Florida

• Myotonic Dystrophy: Overview (.pptx)
  S.H. Subramony, M.D.
• Department of Physical Therapy (.pptx)
  Donovan Lott, Ph.D.
• Cognitive changes associated with Myotonic Dystrophy: What are they and how do you manage them? (.pptx)
  John B Williamson, Ph.D.
• Genetics of Myotonic Dystrophy (.pptx)
  Deborah Barbouth, M.D., FACMGG

May 18, 2019 - Houston Methodist Hospital

• Managment of Breathing (.pptx)
  Presented by Ericka Simpson, MD, FAAN in honor of Vanessa Holland, MD, MPH, PA
• Serendipity, Security, Survival: Optimizing Evaluation & Management of the DM Patient (.pptx)
  Presented by Ericka Simpson, MD, FAAN

April 13, 2019 - Virginia Commonwealth University

• DM Research at VCU
  Presented by Nicholas Johnson, MD, MSCI
• DM Day Overview

October 21, 2017 - University of Florida

• Myotonic Dystrophy: An Overview (.pptx)
  Presented by S.H. Subramony, M.D.
• Myotonic Dystrophy Research: What’s Next? (.pptx)
  Presented by Andy Berglund, Ph.D.
• Cardiology and DM (.pptx)
  Presented by William Miles, M.D.
• Social cognition: Evolving Ideas in Myotonic Dystrophy (.pptx)
  Presented by John Williamson, Ph.D.
• Rehab Strategies (.pptx)
  Presented by Lisa Warren, O.T.

July 22, 2017 - University of Kansas

• Myotonic Dystrophy: An Overview (.pptx)
  Presented by Karen Mul, M.D.
• Myotonic Dystrophy Research: What's Next? (.pptx)
  Presented by Jeffrey Statland, M.D.
• Cardiology and DM (.pptx)
  Presented by Kevin Mulhern, M.D.
• DM and Sleep(.pptx)
  Presented by Suzanne Stevens, M.D.
• Transitional and Palliative Care(.pptx)
  Presented by Kathleen Davis, Ph.D.
• Physical and Occupational Therapy (.pptx)
  Presented by Scarlett Morris, D.P.T., and Kelli Reiling, O.T.D.
• Respiratory Complications (.pptx)
  Presented by Michael Czervinske, R.R.T.-N.P.S.

June 10, 2017 - University of Iowa

• Myotonic Dystrophy: An Overview (.pptx)
  Presented by Laurie Gutmann, M.D.
• Myotonic Dystrophy Research: What’s Next? Part 1 (.pptx) | Part 2 (.pptx)
  Presented by Peg Nopoulos, M.D. and Ian DeVolder, Ph.D.
• Cognitive Changes in Myotonic Dystrophy (.pptx)
  Presented by David Moser, Ph.D.
• Cardiac Problems in Myotonic Dystrophy (.pptx)
  Presented by Ferhaan Ahmad, M.D., Ph.D.
• PT/OT (.pptx)
  Presented by Stephanie Evans, PT, DPT
• Genetics (.pptx)
  Presented by Janel Phetteplace, CGC