A new research study is available at the University of Rochester. The study is called “Sexual and menstrual function in Women with Myotonic Dystrophy and Facioscapulohumeral muscular dystrophy". It is conducted by Dr. Johanna Hamel and Jeanne Dekdebrun.

Myotonic dystrophy type 1 and type 2 affect skeletal and smooth muscle. Skeletal muscle is found, for example, in our arm and leg muscles, and smooth muscle is found, for example, in the gastrointestinal tract or organs of the pelvic floor. This study aims to find out whether women with myotonic dystrophy may have symptoms related to menstrual and sexual function.

Study Details

• You can participate in this study if you have myotonic dystrophy type 1 OR type 2 and are 18 years or older, and identify as female at birth.
• This study entails a survey that will take about 30 minutes.
• The survey will ask questions about your diagnosis of myotonic dystrophy, your symptoms, and symptoms related to your menstrual and sexual health.
• Click here to preview the study questions.

Ready to Participate?

If you are interested in this project, click here to access the study!

Know someone who might be interested? Share this flyer with your network.

Questions?

If you have questions about the study, you may contact the study team at the email listed below:

• Rochester Study Team (585)-276-4611