Patient Advocacy & Orphan Drug Workshop - Portland, OR

Oregon Patient Advocacy & Orphan Drug Workshop

Date: Friday, April 5, 2019

Time: 8:30 AM to 3:00 PM

Location: World Trade Conference Center

121 SW Salmon Street
Portland, OR 97204

All advocates are invited to attend and participate in the upcoming patient advocacy and orphan drug workshops. These free workshops feature an opportunity to speak directly with members of State Congress about the Orphan Drug Act. Light breakfast and lunch will be provided. For more information about this event and RARE:OR, visit the Rare Action Network Website.

Register for Free!

Date(s)

Fri, 04/05/2019 - 05:00AM

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Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.