Any closed Facebook groups, forums or membership sections associated with the Myotonic Dystrophy Foundation website or the Myotonic Dystrophy Foundation Blog are for the use of people affected by DM and their families, and are maintained as semi-restricted forums. However, the Myotonic Dystrophy Foundation does not and cannot monitor any bulletin boards 24 hours a day, and is not responsible for the contents, accuracy, completeness, privacy or usefulness of any messages posted. If you feel that a posted message is objectionable, please e-mail us immediately at info@myotonic.org. The Myotonic Dystrophy Foundation can and may remove objectionable messages. Message removal is a manual process and may not occur immediately.

This site has security measures in place to protect the loss, misuse and alteration of the information under our control. Our computer networks and those of our hosting company are protected by passwords, firewalls and other security. However, while we take reasonable steps to preserve the privacy of information, no web-based or electronic storage systems can be fully protected from unauthorized intrusion or the use of information acquired by others with access to the site. Therefore, the Myotonic Dystrophy Foundation cannot and does not guarantee the confidentiality of any information posted to the closed groups or forums. Members are further advised that while steps are taken to maintain the privacy of the information posted to this site, the web and this site are not and can never be totally secure. Therefore members and other individuals posting information to this site should be aware that the information posted could be accessed by outside parties.

Information posted to this site may contain the private diagnoses and treatment(s) of bloggers and commenters. By entering into this Agreement, you agree that, with respect to other users' personally identifiable information that you obtain through the site or through a related communication, you will only use this information for website-related communications on this site.

You expressly agree that you will not reveal any information obtained about another individual from this site. You agree, through your use of this service, that you will not use this site to post any material that is knowingly false and/or defamatory, inaccurate, abusive, vulgar, hateful, harassing, profane, threatening, sexually explicit, invasive of a person's privacy, or that otherwise violates any law. Further, you may not place on the site any material that is encrypted, commercial or charitable solicitations or unauthorized advertising, infringes on copyright, invades anyone's privacy, or encourages conduct that would constitute a criminal offence, give rise to civil liability, or that otherwise violates any local, state, federal, national or international law or regulation. You also agree that you will not use the Myotonic Dystrophy Foundation Blog or closed Facebook group comment pages for commercial or charitable solicitations or purposes not specifically approved in writing by the Myotonic Dystrophy Foundation. “Commercial” or “charitable” as used for purposes of posted messages means communications whose primary purpose is to advance the business or financial interests of any person or entity, or otherwise to promote a financial transaction for the benefit of the author or entity mentioned either directly or indirectly. Examples of prohibited communications include advertisements for products or services, notices regarding sale or rental of products, or direct solicitations of bulletin board viewers to purchase products or services. The policy is not to prohibit discussion by members of products or professional services; rather it is to prohibit advertising or attempts to sell such products and services.

Any personal contact information provided to the Myotonic Dystrophy Foundation will be kept private. You will not be solicited and the Myotonic Dystrophy Foundation will not sell or disclose your contact information to any other companies.

The Myotonic Dystrophy Foundation is not responsible for the privacy practices of any linked companies or blog commenters.