MDF offers resources and information for clinicians treating people living with myotonic dystrophy:

• Anesthesia Guidelines

• Clinical Care Recommendations for:

  • Adults with Myotonic Dystrophy Type 1

    • English - Consensus-based Care Recommendations for Adults with Myotonic Dystrophy Type 1 and Quick Reference Guide

    • French - Recommandations de soins basées sur le consensus pour les adultes atteints de Dystrophie Myotonique de Type 1

    • Italian - Raccomandazioni per la cura delle persone adulte affette da Distrofia Miotonica di tipo 1

    • German - Konsensbasierte Behandlungsempfehlungen für erwachsene Patienten mit Myotoner Dystrophie Typ 1 (DM1) and German Quick Reference Guide

  • Congenital or Childhood-onset Myotonic Dystrophy Type 1 and Quick Reference Guide

  • Adults with Myotonic Dystrophy Type 2 and Quick Reference Guide

• Pending Consensus-based Care Recommendations:

  • Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1

  • Consensus-based Care Recommendations for Pulmonologists Treating Adults with Myotonic Dystrophy Type 1

• Integrated Care Pathway Tool for Nurses

• Occupational Therapy Guidelines

• Physical Therapy Guidelines

• The Impact of Pregnancy on Myotonic Dystrophy: A Registry-based Study

Questions?

Contact MDF for more information.