Rare Disease Day is a worldwide event designed to improve the lives of millions of people living with rare diseases by raising awareness among policy makers, the scientific community and the general public. It was launched in 2008 by EURODIS and takes place on the last day of February each year in more than 65 nations. The U.S. program is led by NORD.

Join us to make myotonic dystrophy one of the most prominent disease voices raised this month! Find Rare Disese Day events across the globe on the official RDD website.