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Research

Healthcare use, costs, and comorbidities in myotonic dystrophy (2012–2019)

Last modified: April 8, 2026

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This study interrogated health insurance claims data to explore the clinical experience, healthcare resource utilization (HCRU), and all-cause costs for DM.

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Other related resources

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Funding application guides

Grant and fellowship application guides and resources.
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Myotonic dystrophy drug development pipeline

Download the myotonic dystrophy drug development pipeline.
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The Christopher Project Report: Report to the Myotonic Dystrophy Community

A report capturing patient and caregiver perspectives to deepen understanding of life with myotonic dystrophy.
Research
MDF publishes article in therapeutic innovation and regulatory science

Examines the status of biomarker, endpoint and clinical trial design for myotonic dystrophy therapy development.