This comprehensive guide for individuals with DM and their families was created by MDF staff & volunteers under the guidance of the MDF Scientific Advisory Committee. The Toolkit includes valuable information for people living with myotonic dystrophy and their families as well as resources for medical professionals. The Toolkit explains the genetics, diagnosis, symptoms, care management, and more covering all forms and manifestations of DM.
In this toolkit, you’ll also find information on:
- Understanding DM1 and DM2: Learn about the genetic mechanism, symptoms, progression, and management strategies.
- Living with DM1 and DM2: Discover tips and strategies for daily life, including managing symptoms and maintaining wellness.
- Sharing Your Experience: Feel more confident having conversations with your healthcare providers about what’s important to you in exploring and making healthcare decisions.
- Support and Resources: Find out how to connect with others, access support groups, and utilize MDF resources.
Order a Toolkit
You can order a toolkit by filling out this form. You can also find all our resources online: MDF Resources (Toolkits & Publications)
Additional Support
If you have any questions, or are looking for support and to get connected to the community, reach out to MDF’s professionally staffed Warmline: info@myotonic.org, 415-800-7777, or request warmline support online. You can also find further support resources by visiting our Find Support page.
