How we can help
Connecting you to information, services, and people who understand myotonic dystrophy.
Connecting you to support
No one should have to navigate myotonic dystrophy alone. MDF helps connect individuals and families with knowledgeable healthcare providers and welcoming support groups who understand the realities of living with DM. Whether you’re looking for specialized medical care or meaningful peer support, we’re here to help you find trusted connections and feel supported every step of the way.
Providing trusted information on myotonic dystrophy
Clear, reliable information is essential when navigating life with myotonic dystrophy. MDF offers medically reviewed, up-to-date resources you can trust – whether you’re newly diagnosed, managing symptoms, or supporting a loved one. Our educational materials help you make informed decisions, understand care options, and feel more confident at every stage of the journey.
How DM affects the body (Care Tools)
Explore how myotonic dystrophy affects different parts of the body and daily functioning.
Resources (Toolkit & publications)
Downloadable and online resources for newly-diagnosed families, those living with DM, and healthcare professionals.
Over 200 hours of videos and webinars on an array of topics.
Our impact for myotonic dystrophy research
The Myotonic Dystrophy Foundation is the world’s largest Myotonic Dystrophy (DM) patient advocacy organization, connecting people living with DM in more than 80 countries around the world. What helps make this organization so meaningful is your role in it – your advocacy to advance our mission “Community, Care, and a Cure” and your support of us and of one another.
