Celebrating the 4th Annual International Myotonic Dystrophy Awareness Day!
On the 15th of September 2024, the Global Alliance for Myotonic Dystrophy Awareness united over 60+ organisations from around the globe to mark the fourth annual International Myotonic Dystrophy Awareness Day.
In celebration the day, our incredible community members and partners from all around the world dressed for the occasion and lit their local and national monuments in green. This Light Up Green initiative increases DM visibility in our larger communities and across social media, plus they make for some great photos!
A Special Advocacy Webinar by MDF
To commemorate the 4th annual International Myotonic Dystrophy Awareness Day, MDF hosted a special webinar presentation with our Advocacy Lead, Kevin Brennan. The webinar focused on MDF's 2024 MDF Advocacy Priorities within the United States.
Click here to watch our 2024 International Myotonic Dystrophy Awareness Day Advocacy webinar.
DM Awareness Day Highlights from Around the World
Myotonic dystrophy awareness efforts continue to expand across the globe! Make sure to check out all our partners in the Global Alliance for Myotonic Dystrophy Awareness on Social Media!
Don't miss these exciting updates from some of our most active partners:
- Special shoutout to a new member of the Global Alliance, the University of Belgrade - Faculty of Biology, Center of Human Genetics, for their community event in Serbia and their assistance in creating translations of the Awareness Day logo and Myotonic Dystrophy At a Glance facts!
- The University at Alabany's RNA Institute lit up much of New York and hosted a community event to raise awareness!
- MDF Support Group Facilitator Beth Feigenblatt, Emma Shea (MDF Research Fellow), friends, & the NeuroGenetics Student Org at the University of Florida obtained a proclamation to recognize September 15th as International Myotonic Dystrophy Awareness Day!
- Global Alliance member, Cure DM, facilitated and shared out an outstanding amount of landmarks and monuments lit green throughout the UK and beyond!
- Darren Monckton’s Lab at the University of Scotland at Glasgow lit the Gilbert Scott building green, baked green cakes, and shared information about myotonic dystrophy.
- The Dyne Therapeutics team also wore green in celebration.
MDF thanks all Global Alliance Members for their continued partnership and dedication the global myotonic dystrophy community!
Photo Highlights from September 15th
Check out some of the incredible photos shared by our partners below! Looking for more photos, search your favorite social media platform using the official hashtags #myotonicDystrophy and #myotonicDystrophyAwareness.
Gateshead Millennium Bridge, UK 2024
