We’ve refreshed our website! Take a look around, tell us what you think, or revisit the archived site.
Join us at the 2026 MDF regional conference - Happening in a city near you!
Event details
Join the monthly newsletter called MyDispatch - Keeping you up to date in research advances
Join now
Donate
Team —
Support Group Facilitators

Meet Bernhard Rogg

International German Speakers Support Group

MDF Annual Conference

View past & upcoming conferences

Bernhard Rogg is Support Group Facilitator of our international Speakers Support Group for Germen-speaking countries, also known as Telephone Talk Group Dm1 /Dm2. Bernhard was diagnosed with DM2 in 2016. He has been organizing the international telephone discussion group since 2018. His motto was and is: I don’t think about problems, I am looking for solutions.

Meet the rest of the team

Board of Directors
Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.
Medical & Scientific Advisory Committee
A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.
Staff & Interns
Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.
Support Group Facilitators
Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.
Former Board Members
Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.