History of the foundation
Strengthening the DM community through support, care, advocacy, and research that leads us closer to treatments and a cure.
Community, Care and a Cure
The Myotonic Dystrophy Foundation (MDF) was founded in California in 2007 as a 501(c)(3) nonprofit organization. From the start, our mission of “care and a cure” has focused on connecting people living with myotonic dystrophy (DM), their families, and caregivers with trusted information, support, and each other. Our original logo of two hands shaking reflected the community, trust, and respect that continue to guide our work.
Today, MDF is the world’s largest myotonic dystrophy-focused patient advocacy organization, serving thousands of individuals and families in more than 139 countries. With our community and supporters, we have raised and invested more than $39 million to improve care, advance research, and support the development of new treatments for DM.
Coming Soon: MDF Through the Years
We’re building a new timeline celebrating the milestones that have shaped MDF since 2007. From growing our community and expanding support programs to advancing research, advocacy, and drug development, explore the progress we’ve made together and the moments bringing us closer to Community, Care, and a Cure.
