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Presented at the 2024 MDF Regional Conference on Saturday, May 4, 2024 at the Dunn Tower at Houston Methodist in Houston, TX.

Presented at the MDF 2024 Regional Conference in Gainesville, FL, on Saturday, March 23, 2024 at the Harrell Medical Education Building at the University of Florida.

Respiratory System - CDM

Learn more about the patterns, symptoms, diagnosis and treatments available for Respiratory System problems in CDM.

Respiratory System - DM2

Learn more about the patterns, symptoms, diagnosis and treatments available for Respiratory System problems in DM2.

Respiratory System - DM1

Learn more about the patterns, symptoms, diagnosis and treatments available for Respiratory System problems in DM1.

Myotonic Dystrophy Anesthesia Guidelines

Share the DM Anesthesia Guidelines with your Doctor! Individuals living with myotonic dystrophy can have severe reactions to anesthesia and should be monitored carefully whenever anesthesia is administered. Download the one page Anesthesia Quick Reference Guide!

Download DM-Specific Resources

Explore MDF's resources for people living with DM and others involved in their care, safety, and happiness. View all our DM Toolkits & Publications!

Myotonic Dystrophy News

December 17,2024

Research Pilot Grant Feature: Paloma Gonzalez Perez, MD, PhD

2024 Pilot Grant Recipient, Paloma Gonzalez Perez, MD, PhD, is leading an exciting Pilot Grant-funded study titled "Investigating Benefits of a Physical Therapist-Guided Exercise Program in Myotonic Dystrophy Type 2 (DM2)". This innovative project tests the effectiveness of the PRIME program, a patient-friendly regimen designed to strengthen the core and proximal limb muscles often affected in DM2.

December 17,2024

Research Pilot Grant Feature: Joel R. Chamberlain, PhD

As an MDF Pilot Grant recipient, Dr. Joel R. Chamberlain, PhD, is leading an exciting project titled “Efficacy Testing of Cell-Derived Nanovesicle Delivery of Small Interfering RNAs for Treatment of DM1.” Her team is pioneering a novel approach to treat DM1 by utilizing natural cell-derived vesicles to deliver therapies aimed at eliminating toxic RNA structures in the muscles and tissues of DM1 patients.

December 17,2024

Nouveau Groupe de Soutien International Pour les Francophones!

MDF est ravi de lancer un nouveau groupe de soutien international pour les francophones en janvier 2025! Ce groupe sera notre troisième groupe linguistique international et espère impliquer les membres de notre communauté du monde entier.

November 27,2024

MDF Launches 2025 Pilot Grant Applications

We have launched a new round of our Pilot Grants Program! This program offers $50,000 in one-year support for researchers focused on myotonic dystrophy (DM). The goal is to provide DM researchers with the opportunity to explore innovative ideas and conduct preliminary investigations. This funding can help generate essential data and preliminary findings, laying the groundwork for larger-scale research projects.

November 21,2024

Meet the 2024 MDF Pilot Grant Recipients!

We are thrilled to introduce the recipients of our first round of the Pilot Grant program, each leading groundbreaking research to advance understanding and treatment of myotonic dystrophy (DM). These innovative projects represent the future of DM research, and we are excited to support their important work!

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.

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