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Ask-the-Expert: Disability protections & myotonic dystrophy

Publicado: octubre 22, 2026

Originally presented on October 16, 2026.

This webinar features Marisa Spain. Marisa Spain is a disability justice advocate living with FSHD, a form of muscular dystrophy. She works as an employment advocate at her state’s protection and advocacy organization for people with disabilities. Marisa spends most of her work days advising callers regarding disability-related workplace discrimination issues and advocating for individuals struggling to receive services from the state vocational rehabilitation system.

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Questions or comments? Contact MDF at 415-800-7777 or at info@myotonic.org.

Thank you to our 2026 Community Education Webinar Series Sponsor, Avidity Biosciences!

MDF Resources referenced in this video: