2018 MDF Annual Conference | Myotonic Dystrophy Foundation

The Latest in Symptom Management, Research, Drug Development and More

The 2018 MDF Annual Conference took place Friday, September 14, 2018, through Saturday, September 15, 2018, in Nashville, TN. This year’s conference featured networking, symptom management and research update sessions for community members and a full-day closed research and drug development track for academic and industry professionals. More than 400 families, clinicians, researchers, industry representatives and caregivers attended to improve the lives of people living with myotonic dystrophy. Highlights from this year's conference.

Conference Program

Download the 2018 MDF Annual Conference program.

View the agenda for the closed professional track.

Presentations and Recorded Sessions

Click here to view the presentations and video recordings from the 2018 MDF Annual Conference.

Questions?

For more information contact MDF at info@myotonic.org or by phone at 415-800-7777.

Myotonic Dystrophy News

December 17,2024

Research Pilot Grant Feature: Paloma Gonzalez Perez, MD, PhD

2024 Pilot Grant Recipient, Paloma Gonzalez Perez, MD, PhD, is leading an exciting Pilot Grant-funded study titled "Investigating Benefits of a Physical Therapist-Guided Exercise Program in Myotonic Dystrophy Type 2 (DM2)". This innovative project tests the effectiveness of the PRIME program, a patient-friendly regimen designed to strengthen the core and proximal limb muscles often affected in DM2.

December 17,2024

Research Pilot Grant Feature: Joel R. Chamberlain, PhD

As an MDF Pilot Grant recipient, Dr. Joel R. Chamberlain, PhD, is leading an exciting project titled “Efficacy Testing of Cell-Derived Nanovesicle Delivery of Small Interfering RNAs for Treatment of DM1.” Her team is pioneering a novel approach to treat DM1 by utilizing natural cell-derived vesicles to deliver therapies aimed at eliminating toxic RNA structures in the muscles and tissues of DM1 patients.

December 17,2024

Nouveau Groupe de Soutien International Pour les Francophones!

MDF est ravi de lancer un nouveau groupe de soutien international pour les francophones en janvier 2025! Ce groupe sera notre troisième groupe linguistique international et espère impliquer les membres de notre communauté du monde entier.

November 27,2024

MDF Launches 2025 Pilot Grant Applications

We have launched a new round of our Pilot Grants Program! This program offers $50,000 in one-year support for researchers focused on myotonic dystrophy (DM). The goal is to provide DM researchers with the opportunity to explore innovative ideas and conduct preliminary investigations. This funding can help generate essential data and preliminary findings, laying the groundwork for larger-scale research projects.

November 21,2024

Meet the 2024 MDF Pilot Grant Recipients!

We are thrilled to introduce the recipients of our first round of the Pilot Grant program, each leading groundbreaking research to advance understanding and treatment of myotonic dystrophy (DM). These innovative projects represent the future of DM research, and we are excited to support their important work!

Questions?

Request Warmline Support! MDF offers a professionally staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Click here to request Warmline Support.

Additional questions? Contact MDF by email at info@myotonic.org or give us a call at 415-800-7777.