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Save the Date: Join us April 28 - May 2 for the 2027 MDF International Conference in Seattle, Washington!

IMPORTANT: Find all anesthesia guides for individuals and their families and healthcare professionals

Support Group Facilitators

Meet Erin Beucler

DM 1 Facebook Group Moderator

MDF Annual Conference

View past & upcoming conferences

Erin Beucler is a support group facilitator for the DM1 Facebook page, she also participates in the Wednesday night chat on Facebook Messenger. Erin was diagnosed with DM1 in 2016 when she was 34. In 2006, Erin graduated with a degree in medical imaging, and now works full time at St. Vincent Medical Center as an X-Ray technician is not monitoring the Facebook page, or chatting in the DM Adult Facebook Chat, she loves spending time outside, reading, going on vacation and enjoying time with friends and family, especially her husband, Nathan.

Meet the rest of the team

Board of Directors

Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.

Medical & Scientific Advisory Committee

A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.

Staff & Interns

Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.

Support Group Facilitators

Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.

Former Board Members

Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.