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Team —
Support Group Facilitators

Meet Luke Desforges

JOA Warriors Support Group

MDF Annual Conference

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Luke Desforges is a young adult living with DM1, specifically as a Juvenile Onset Adult (JOA). Luke will be cofacilitating the monthly JOA Warriors Support Group, as well as helping ensure his peers have good experiences on the JOA Tracks at MDF Conferences. He likes to spend time taking his puppy on walks, playing video and board games with friends, writing creative stories, and most of all, mastering his magic tricks. Luke is excited to serve the DM Community and begin his role as an SGF!

Meet the rest of the team

Board of Directors
Comprised of leaders in science, finance, fundraising, advocacy and non-profit leadership. Their expertise helps our work, assess our impact, and guide our pursuit of patient-relevant outcomes.
Medical & Scientific Advisory Committee
A group of leading myotonic dystrophy specialists and researchers from around the globe. Our advisors provide guidance, grant peer reviews, and speak at our annual conference.
Staff & Interns
Our staff and interns oversee the Foundation’s daily operations and work closely with the Board to guide and implement our strategic priorities.
Support Group Facilitators
Our support group facilitators are volunteers who give their time and energy to guide discussions, share resources, and foster meaningful support for individuals and families living with DM.
Former Board Members
Past leaders who have helped shape the organization’s direction and impact. Their experience and dedication continue to inform our work and strengthen our commitment to the community.