Presented on September 10, 2022.
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Presenters include:
Click here to learn more about the 2022 MDF Annual Conference.
Presented on September 9, 2022.
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field. Presenters include:
Click here to learn more about the 2022 MDF Annual Conference.
Learn about the different resources that have been created for the Myotonic Dystrophy community! This presentation provides an introduction to help familiarize you with the resources and support options available for families affected by myotonic dystrophy.
The resources discussed during this video can be found at:
For newly diagnosed families, we recommend the following resources:
Have questions? Need more help? Contact us!
Representatives from biotech and pharma companies will provide updates on their drug development efforts in the DM field, including companies new to the Myotonic Annual Conference. The industry updates are followed by the Q&A session where questions submitted throughout the conference are answered by a panel of DM Professionals.
Matt Disney, PhD., Expansion Therapeutics - Slides
Art Levin, PhD, Avidity Biosciences - Slides coming soon!
Laury Mignon, PhD, Ionis Therapeutics - Slides coming soon!
Mo Qatanani, PhD, Dyne Therapeutics - Slides
This session explains how myotonic dystrophy may impact your heart and provides an overview of the cardiac electrical system, common symptoms associated with conduction problems, and preventative measures.
Join Certified Genetic Counselor Tiffany Grider from the University of Iowa for an recorded webinar on genetic testing. Topics include:
+ The underlying genetic cause of myotonic dystrophy type 1.
+ How this genetic cause leads to so many different medical problems including muscle weakness.
+ Inheritance, the risks for congenital myotonic dystrophy and the genetic basis for the more severe symptoms.
+ Different types of genetic testing including diagnostic, presymptomatic, and prenatal.
+ Research being done for gene therapies.
MDF created a short video to recognize and celebrate Moxley’s incredible commitment and impact on the treatment of myotonic dystrophy and scientific discovery to drive disease understanding and therapy development. “Mox” is in many ways irreplaceable, functioning as a singular force in the myotonic dystrophy field for over four decades.
Read more about the tribute to Dr. Moxley.
There are many heroes in the myotonic dystrophy community, from the people living with this disease to their caregivers, physicians and the researchers who focus on developing therapies and better disease understanding every day. Watch this moving short film to hear a few of these heroes described and celebrated.
Dr. Chad Ruoff of the Stanford Center for Sleep Science and Medicine discusses common sleep issues associated with myotonic dystrophy, and ways to manage these symptoms.