Ted Salwin is the Support Group Facilitator for the Caregiver’s Virtual Support Group. Ted’s DM story began as the caregiver for his wife and son – both affected by DM1. Ted’s wife had adult onset while his son had congenital myotonic dystrophy. They have both lost their battles with DM.
Ted spent many years believing that everyone with DM1 existed only under his roof, and had no clue that there was a community dealing with the same disease. He strongly believes in the community and the information MDF provides. This very week Ted shared the Cardiology Toolkit with a family, and sincerely hopes it helped them. Ted spent many years trying to understand this disease on his own, but if he can help it, no one should feel as alone as he did… ever.
